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DECEMBER 2023

 DECEMBER 2023
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INELDA Newsletter - Notes for the Journey
NEWS BRIEFS MEDIA INELDA UPDATE PRACTICE CORNER EVENTS
A Year-End Message From INELDA’s Executive Director
A Year-End Message From INELDA’s Executive Director
by Douglas Simpson

As the year end approaches, I am drawn to reflect on the voices I have heard throughout 2023. As I begin my reflection, I am deeply moved by our core values and reminded how important they are not only to the organization, but also to me personally. One of our core values is the principle of evolving—that we will continue to acknowledge change and gain wisdom from that change. I am thankful for the growth that evolution allows and all that we accomplished in the last year. And like every organization, INELDA has been shaped by the individuals who have committed to expanding and implementing the teachings that we offer. I am grateful for shared lessons from those within our doula community, organizations we are members of, and others who have moved on to a new path. All of us at the organization, including myself, are more informed thanks to all of your input.

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doula Profile
Russ Alexander

Russ’s story starts with his mother, who died August 2012 after a long illness while on hospice service. He had only minimal experience with death, dying, and hospice prior to her death. Thanks to her hospice service, Russ found her last days to be a sacred time. That experience led him to become a hospice volunteer in 2013. He is the cofounder of Sunset Companions, based in Philadelphia.

Doula Profile - Russ Alexander
Q&A with Russ

When and why did you decide to become an end-of-life doula?

I do this death doula work in honor of my mom, who died in 2012. She spent her last five days on hospice service. I found her death in that place to be a profound, sacred, and momentous experience.

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 INELDA Year-End Giving - Donate Here

UPCOMING EVENTS
INELDA Discovery Call - Becoming an End-of-Life - December 19 Discovery Call: Becoming an End-of-Life Doula


December 19 | TUE 7-8:30pm ET

Learn about INELDA’s End-of-Life Doula Training and our approach to supporting the dying and their loved ones. This discovery call is an opportunity to hear about the topics covered during our training and how we facilitate a supportive and experiential learning environment. INELDA educator Kris Kington-Barker will share our approach and answer any questions about becoming an end-of-life doula. Calls are open to all, but registration is required due to capacity. | REGISTER

INELDA Workshop - Poetic Medicine with John Fox - January 10-24 Poetic Medicine: The Healing Art of Poem-Making


January 10-24 | WED 7pm ET

INELDA is partnering with The Institute for Poetic Medicine for a three-session series focusing on the art of listening, exploring the human experience, and diving into the range of human emotion. Explore poetry “techniques” for successfully using poetry and poem-making for those who are served—as well as a “tool” or “companion” for use by those who are serving. This online workshop will meet Wednesday evenings for 1.5 to 2 hours each session. 

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INELDA Hospice End-of-Life Doula Training Event - January 27-28 Hospice End-of-Life Doula Training 


January 27-28 | SAT & SUN 10:30am-7pm ET

Hospice end-of-life doula training is designed for care provider organizations seeking to have current staff or volunteers trained as end-of-life doulas to enhance their care teams and services. Limited to 24 seats. This two-day training taught by educator Claudette Peterson is open to those who are currently affiliated, volunteer with, or employed by a hospice organization. Click to see the full schedule | REGISTER

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MEDIA OF THE MONTH
Media of the Month - When You Die Podcast
When You Die

The When You Die podcast was founded by the nonprofit When You Die Project, which has been hosting good conversations around death and dying through documentaries, podcasts, a resource-rich website, and a robust social media presence since 2016. The podcast has an archive going back to 2017 featuring voices from palliative care doctors, leading researchers, death doulas, and the bereaved, as well as poets, comedians, artists, and everyday people.

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Inequities and Violence Eliminate Choices at End of Life
by INELDA

As we navigate the end-of-life space, as both death doulas and humans, we recognize and want to acknowledge that many of us are experiencing pain over recent headlines. We are devastated by the scale of violence and inequities that we are living with both in the United States and overseas. We firmly believe that everyone should have self-determination and choice at the end of life. The killing of others and inequitable policies eliminate the ability to have choice at end of life.

Inequities and Violence Eliminate Choices at End of Life

There are many things we can point to, from the deaths of Israelis and Palestinians to the United States breaking the record for mass shootings in 2023 to the millions of deaths that have occurred due to ongoing global conflicts, intentional homicides, and lack of access to basic services and health care. All of these things leave us untethered and pained by the human experience.

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INELDA UPDATE
VOLUNTEER OPPORTUNITY IN PENNSYLVANIA
The Affinity Care of Pennsylvania located in the town of Trevose in Bucks County is welcoming INELDA-trained end-of-life doulas as volunteers in its system. Affinity Care is rooted in the belief that “every person deserves dignity and compassion when faced with a life-limiting illness. The unique combination of hospice and residential services that we offer allow for a seamless transition for your loved ones as their needs shift and change.” READ MORE
Affinity Care of Pennsylvania

 

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ACAMAiD JOURNAL LAUNCHED

This month INELDA contributed a book review to the American Clinicians Academy on Medical Aid in Dying’s new publication, Journal of Aid-in-Dying Medicine. READ MORE


JOB OPPORTUNITY: INELDA DIRECTOR OF DEVELOPMENT

INELDA is hiring a part-time director of development. If you have a passion to change the way end-of-life care is delivered in this country and more than three to five years of experience in development, please consider becoming part of our team. READ MORE AND APPLY

JOB OPPORTUNITY: INELDA DIRECTOR OF DEVELOPMENT

 


STAFF TRANSITIONS

We would like to thank Marady Duran for the work and energy she has brought to INELDA. We are grateful for her voice and the valuable ideas that she has contributed.


IN THE NEWS
The Huffington Post spoke with director of communications and partnerships Loren Talbot about the techniques to approach end-of-life conversations for its article “6 Uncomfortable but Necessary Questions to Ask Your Older Parents.”
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INELDA’S DECEMBER WEBINAR
Monthly Webinar
Closing the Year: A Ritual Workshop and Conversation
December 27 | WED 7-8:30pm ET
For our last webinar of 2023, we will focus on rituals for self-care and community-care, as we prepare to close one year and welcome the next. We hope you can join us for this special event with Megan Sheldon, the cofounder of Be Ceremonial. Megan is a mythologist, storyteller, and celebrant who is passionate about building community through storytelling. She will offer us a framework to draw from when crafting our own ceremonies, and hold space for the range of emotions that may surface during our time together. Webinar Speaker - Megan Sheldon of Be Ceremonial

Megan will be accompanied by INELDA educator Nicole Heidbreder. Together they will create an intentional environment to not only discuss ritual, but to celebrate and honor the current year and set intentions for 2024. *Please bring a rock, pen, paper, and scissors, or come as you are!

 Cost: Free with INELDA Tier 2 & 3 membership | Tier 1 and Non-members $15

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PRACTICE CORNER

TOOLBOX TIPS

Recently a doula on Facebook asked if anyone had supported a client with dementia through Voluntarily Stopping Eating and Drinking (VSED). The Compassion and Choices website has a lot of valuable information.

Tool Box

Two doulas also shared their tips:

  • This book, The VSED Handbook: A Practical Guide to Voluntarily Stopping Eating and Drinking,  is a great resource. The author writes about her mother choosing VSED after being diagnosed with Alzheimer’s. It’s short, maybe 80 pages, but very comprehensive. —Kirstin Briones
  • The video Jane’s VSED Journey is a great resource for VSED questions. —June Rzendzian Jacobson
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SHARING SOURCES
Artifcts

Artifcts’ cofounders Heather Nickerson and Ellen Goodwin worked together at the Central Intelligence Agency and founded Artifcts to preserve personal and global history as represented by the objects of our lives.

Sharing Sources - Artifcts

The app allows one to capture an image of an object and catalog it. Each image can be accompanied by words, tags, pricing, links, dates, country of origin, and more. The tool can be used by people who are downsizing, looking to pass along heirlooms, creating a catalog of objects for a client or loved one, and sharing the relevance of the item with others.

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ASK INELDA

Ask INELDA Image - Eucalyptus Branch

When I originally signed up for my training, I was thinking about becoming a doula for my family. But now I am getting the vibe that I shouldn’t be there in this capacity, and I hope to understand why.—Training participant

Educator Wilka Roig: Our stance is we are not doulas with loved ones or people we know—friends, friends of friends, parents, or any of these close relations. Being a doula is about remaining objective and not having a personal investment in the person’s rights, choices, and the course of their condition. With close relations, it can be hard to not be invested emotionally. When we go into those spaces we are loved ones, family members, or community members who “know some stuff”. We know we have some information that could be useful in the context. READ MORE

 

Please submit questions to [email protected]

Self-Care - Lighting the Dark Night
SELF-CARE

Lighting the Dark Night

“Spring passes, and one remembers one’s innocence. Summer passes, and one remembers one’s exuberance. Autumn passes, and one remembers one’s reverence. Winter passes, and one remembers one’s perseverance.” —Yoko Ono

 

There’s a reason so many winter holiday traditions celebrate with light, from the bulbs on Christmas trees to the candles of Hanukkah and Kwanzaa: It’s dark out there. Earlier sunsets can make 4 p.m. feel like midnight. That darkness, of course, can affect our mood—millions suffer from seasonal affective disorder (SAD). Studies show this can disrupt our circadian rhythms and serotonin and melatonin levels, resulting in depression, fatigue, difficulty concentrating, and more. 

 

The Centers for Disease Control and Prevention reports that older adults are at a greater risk than younger people of developing depression, but are often misdiagnosed or undertreated for it. From social isolation to comorbidities, they are at higher risk for all types of depression. Research also shows that caregivers are vulnerable to similar symptoms. For both groups, this can be exacerbated by shifts in hours of daylight. This means it’s time to double down on self-care as you tend to others who may also be suffering from depression in addition to their end-of-life experience. Give these tips a try as you navigate this time of year. READ MORE

—Valerie Reiss

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News Briefs
by Loren Talbot
Financial Burden at End-of-Life
KFF Health News and The New York Times issued a report, “Facing Financial Ruin as Costs Soar for Elder Care,” on the growing costs of care for older adults and the deep financial implications for caregivers. In the United States there is no comprehensive long-term care health system, and the high cost of health care—along with the lack of long-term care insurance and the labor shortage for home health aides—has required caregivers to move states, sell assets, and give up work. READ MORE  News Brief - Financial Burden at End-of-Life
European Court Hears Euthanasia Case
Last month, Dániel Karsai, a Hungarian citizen who is suffering from amyotrophic lateral sclerosis, or ALS, went before European Court of Human Rights to challenge Hungary’s ban on assisted suicide. Of the 46 member states of the Council of Europe, only six have legalized assisted suicide or euthanasia laws. READ MORE
News Brief - A Growing Housing Issue for Older Persons
A Growing Housing Issue for Older Persons
The Joint Center for Housing Studies of Harvard University issued a new report, Housing America’s Older Adults. This report qualifies the urgent need for increased affordable housing needs for people ages 65 and older. This population has increased 34% in the past 10 years, and the first set of boomers are entering their 80s. READ MORE 
 


The Final Word
The Gardener LXI: Peace, My Heart
by Rabindranath Tagore

Peace, my heart, let the time for

the parting be sweet.

Let it not be a death but completeness.

Let love melt into memory and pain

into songs.

Let the flight through the sky end

in the folding of the wings over the

nest.

Let the last touch of your hands be

gentle like the flower of the night.

Stand still, O Beautiful End, for a

moment, and say your last words in

silence.

I bow to you and hold up my lamp

to light you on your way.

 
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Accessible, Equitable, and Compassionate Deathcare

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Tax ID#: 47-3023741

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