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FEBRUARY 2025

 





A Decade of Doula Impact: Transforming End-of-Life Care

by Douglas Simpson

As we reflect on ten remarkable years, the International End-of-Life Doula Association (INELDA) stands proud of our journey, growth, and impact on end-of-life care. What began as an earnest vision has blossomed into a transformative movement that has touched tens of thousands of lives, perhaps more.

EARNEST BEGINNINGS: PLANTING SEEDS FOR A NEW FIELD OF PRACTICE 

Ten years ago, we set out with a simple yet powerful mission: to transform the way the dying and their families experience the last months, weeks, and days of life  and to provide education that allowed them to better support the dying and their loved ones. Our founders and builders believed that, with this knowledge, we could bring deeper meaning and greater comfort to the dying process. Today our mission has grown and shifted to include encouraging the presence of end-of-life doulas throughout the continuum of care, providing additional education offerings while seeking partnerships and change makers to open up spaces for doulas.


DOULA PROFILE

SUZI BURNS


Suzi spent most of her life in New York, where she also raised her son. With her son is graduating college, Suzi resides in St. Petersburg, Florida. She worked in law supporting injured workers until medical complications led her to focus on her health. She then pursued training and certifications as an INELDA-certified end-of-life doula, certified breath coach, and Reiki practitioner. Suzi volunteers with a local hospice providing end-of-life doula services, respite care, and Reiki work. She also runs Freely Be Doula.  



Q&A WITH SUZI

When and why did you decided to become and end-of-life doula?

My journey to becoming an end-of-life doula is deeply rooted in my personal experience as a survivor of traumatic events, which have profoundly shaped my relationship with life and mortality. Finding purpose in those experiences, coupled with my academic background in religion and psychology, has given me a unique lens through which I view the complexities of death and dying.



UPCOMING EVENTS










The Black River: Death Poems

Edited by Deirdre Pulgram-Arthen

The Black River: Death Poems is an anthology of poems for people who are grieving and for use in death rituals. Sixty-nine authors from eight countries have contributed to this anthology of 149 poems grouped into four stages: dying, death, remaining, and journeying. The poems are heavily indexed: by relationship to deceased; by suggested use in ritual; and by theme (memory loss, pregnancy loss, long and short illness, hope, acceptance of death, and violence, war, and suicide). Edited by Deirdre Pulgram-Arthen, an experienced death midwife, counselor, and death ritual leader, this book is nondenominational and brings together contemporary poets writing on the many stages of grief and death.


THE BIG SWEEP: SWEDISH DEATH CLEANING

by Marady Duran, LMSW, MSW, MATD, and INELDA educator

Several months ago, one of the INELDA learners participating in an end-of-life doula training session informed me that she had previously been a home organizer and had contemplated integrating her new doula skills into “Swedish death cleaning.” Intrigued by this concept, I conducted some research and discovered that Swedish death cleaning aligns perfectly with our doula work.



For those unfamiliar with the practice, Swedish death cleaning, or döstädning, is a practice that combines decluttering with a philosophical approach to managing one’s possessions as they approach the end of life. According to an article and checklist from The Spruce, it is based on principles of mindfulness, simplicity, and consideration for loved ones. This Scandinavian tradition encourages individuals to evaluate their belongings, thoughtfully streamline their possessions, and thereby reduce the burden on family and friends after their passing.



INELDA Educator Wilka Roig is embarking on a death awareness tour in the land of her birth, Puerto Rico. The 2025 Death Awareness Tour is a community project that seeks to transform the relationship we have with death in Puerto Rico. Through workshops, discussions, and educational activities, she will facilitate the creation of safe spaces to talk about death, grief, and life transitions. The goal of the tour is to contextualize death, promote community care, and empower people with tools to prepare to face it with dignity and humanity. INELDA is happy to sponsor and support this tour.


Jill Hoefgen, a graduate student in the art therapy psychology department at Dominican University of California is conducting research for her master’s thesis. She is requesting a few doulas, who have offered doula services for over a year, for voluntary participation in her study, titled Death, End-of-Life Doulas, and Art: Exploring Connections Between Death Competency and Art Making.




INELDA relies on public support to meet our annual budget and continue providing educational and community programs, scholarships, and advocacy and outreach to expand the presence of end-of-life doulas. Help INELDA meet its mission and transform end-of-life care with a monthly gift of $5, $10, or more.








INELDA is sponsoring the Mountains of Courage conference in Bozeman, Montana, this upcoming March 29. Mountains of Courage is a volunteer group of community members who are touched by the human experience of death and dying. The history of the conference is rooted in a group of interested people who came together in 2011 to explore how they could help shift the current paradigm around this very human and challenging subject.




INELDA is excited to offer volunteer opportunities for our upcoming in-person training events! Volunteering is a meaningful way to give back, connect with fellow doulas, and support the transformative work of end-of-life care.

Santa Fe, NM: March 27–30

Austin, TX: April 10–13

Art of Living Retreat Center, Boone, NC: April 30–May 4

Santa Rosa, CA: June 5–8

Omega, Rhinebeck, NY: July 6–11

Lake Forest, IL (Chicago/Milwaukee area): July 31–August 3


INELDA’s director of communications and partnerships, Loren Talbot, wrote a piece that was featured in CMSA Today, the magazine for the Case Management Society of America.



INELDA’S MONTHLY WEBINAR

February 26 | WED 7 – 8:30pm ET

Partnerships between end-of-life doulas and funeral directors have grown in recent years. For this webinar, INELDA and the National Funeral Directors Association have partnered together to bring you two voices from within the community. Embalmer and funeral director Amanda Marie Ellis King, certified funeral service practitioner, and spiritual director and celebrant Jackie Naginey Hook, will talk about how their end-of-life doula training has informed their work.


We will discuss the complementary roles of doulas and funeral directors in providing compassionate and comprehensive end-of-life care. Join us to learn how to foster successful collaboration that benefits both the funeral home and the families served, creating meaningful and personalized end-of-life experiences.

Jackie Naginey Hook is a spiritual director, celebrant, and end-of-life doula whose work helps people find hope, healing, and wholeness at Koch Funeral Home in Pennsylvania. Amanda Marie Ellis King is an embalmer and funeral director holding licensure in multiple states. Both guests trained with INELDA. The webinar will be moderated by INELDA educator Kim Stravers.




Cost: Free with INELDA Tier 2 & 3 Membership | Tier 1 and Non-members $15


PRACTICE CORNER



Someone recently asked on INELDA’s private Facebook page how to find clients. I started just walking into churches and talking to the pastors. I also visited funeral homes, nursing homes, hospices, and senior centers. I passed out a brochure, and that easily led to conversation. The conversations were always really amazing, and the people were so excited. It gave me a lot of energy too.

—Annice Barber


Peacefully


Peacefully is an all-in-one platform designed to help families plan for the future and expertly settle affairs after a loss.

They understand that after a death, families carry a massive administrative burden, which can make a difficult time even harder. Peacefully helps families prepare for end of life (gather info on how to care for dependents, financials, etc.) and handle bureaucratic tasks after a death (cancel utilities, deal with online accounts, plan a funeral, etc.).



The planning vault is free to use with the option of purchasing expert estate planning support and the ability to create customized documents like wills and trusts.

We are excited to offer the INELDA community 10% off to use for yourself and the people you support. Enter the promo code INELDA10 to receive the discount.


ASK INELDA

We had many questions from last month’s webinar The Art of Dying with Jose Hernandez. Jose reached out to expand on one asked by a participant.

Webinar guest Jose Hernandez:  There was a question asked last night regarding coping with the aftermath of suicide. I just wanted to say that whatever the intense pain being experienced that became the catalyst to make such a difficult and irreversible choice, that during the transition process they will shed those thoughts and be free of the pain associated with the act. So the pain they experienced that drove the act is no longer attached to them, and they are free of them. It becomes part of their “surrendering and letting go” process and ultimate acceptance.

Please submit questions to [email protected]


SELF-CARE

The Sound Within Us

Ablaye Cissoko and Cyrille Brotto seep through my speakers, after my dog just went off on the mail carrier (for real), a truck barreled up the street, all after a night of little sleep following a very loud evening of tweens at the grief group I facilitate. Our lives are saturated with sounds. Some we choose and others we have no control over—all coming from someone who has fronted a punk band and is no stranger to noise. I’ve grown to realize that when I am stressed or tired, my response to certain sounds activates me negatively. This is often an unconscious response to the intense stimuli around me.

–Loren Talbot





The case of Lauren Richwine—the Indiana end-of-life doula who has been in a legal battle with the state since receiving a cease and desist order mandating that she stop discussing funeral concerns with her clients unless she obtained funeral-specific licensure—has taken another turn.

As of INELDA’s last update, Richwine had filed a lawsuit in federal court on First Amendment grounds. Since then, the U.S. District Court decision has reinforced Richwine’s First Amendment case, meaning that she could continue to discuss funeral planning with her clients without obtaining funeral director or funeral home licensures.


An estimated 6 million people in the United States live with dementia—a number that researchers expect to skyrocket in the coming decades. By 2060, a million people each year will develop the condition, according to research recently published in Nature Medicine.

The research team, led by epidemiologist Josef Coresh of New York University’s Grossman School of Medicine, predicts that 42% of people 55 and over in the United States will develop dementia, a figure that’s roughly double the conclusions drawn by other teams. The revised estimate is drawn from a more diverse population sample than previous studies and uses a broader array of methods, including hospital records and phone calls to participants.













Recent research published in Cancer shows that having an implantable cardioverter defibrillator (ICD) may lead to more aggressive end-of-life care in older cancer patients. While only 6% of the people included in the study—all of whom died from cancer between 2005 and 2016 and were age 66 or older—had an ICD, the shared risk profile for cancer and heart disease indicates that health care professionals may want to conduct further study.





















THE FINAL WORD

Season of Grief

by Khadijah Queen

My grandmother sat at the head of her oak table
one Labor Day afternoon & in a lull turned to me & said
all the people I knew are dead. When she fixed those two words, I knew,

I felt my heart in the world beat its blood through thin chambers. The constant
rush still interrupts the body I didn’t make, but keep breathing somehow
& functioning until I can’t, & the night before she died, I felt the easing of her spirit,

& the same when my aunt died the year before. I still say to my still-grieving
cousin I’m here—an echo of her mother’s absence, & we are left
together on this side of unknowing, stack like throwing bricks

all the finite seasons we have
& will spend without them. Up against my own lifetime

I wish for fog, early morning. Instead, unpredictable years keep emptying.

“Season of Grief” reprinted with permission from the author. 


Support Accessible, Equitable, and Compassionate Deathcare

DONATE HERE

© INELDA 2025 International End of Life Doula Association is a
501(c)(3) tax-exempt nonprofit organization that relies on public support to do it’s work.
Tax ID#: 47-3023741

Phone: 201-540-9049

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