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JUNE 2024

 JUNE 2024
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INELDA Newsletter - Notes for the Journey
NEWS BRIEFS MEDIA INELDA UPDATE PRACTICE CORNER EVENTS
Dying Unhoused
DYING UNHOUSED
by Loren Talbot

Last month, INELDA’s executive director Douglas Simpson and I found ourselves in the 103-degree heat of Phoenix for the 2024 National Health Care for the Homeless Conference and Policy Symposium. I mention the heat because while we were able to participate in the conference due to the building’s air conditioning, I was regularly considering the people I saw unhoused situated on the hot pavement around the city during our stay. Death can occur anywhere and for many reasons, but as weather conditions exacerbated by climate change intensify, the needs for those experiencing homelessness are increased.

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doula Profile
Kim Stravers

Kim, founder of Night Rose Deathcare is an INELDA-trained, IAP-certified doula who is proficient in National End-of-Life Doula Alliance practices, an after-death care educator, an Earth Traditions–certified death midwife, an InSight Institute–certified funeral celebrant, a former funeral attendant with Dignity Memorial, a volunteer with Hospice of the Valley and Suncrest Hospice and Palliative Care, and a volunteer cofacilitator with the New Song Center for Grieving Children. 

Doula Profile - Kim Stravers
Q&A with Kim

When and why did you decide to become an end-of-life doula?

The date is specific: March 30, 2018. That afternoon, I spent a few hours visiting my friend and colleague Gerhard, who was within months of dying at age 39 from an aggressive and rare hereditary gastric cancer that had been caught too late, at stage 4. Fourteen months earlier, I had lost my only sibling—my younger brother, Michael—to a motor vehicle accident, and returned to Phoenix to grieve with my family after nearly two decades in Southern California. A road trip back to the West Coast to celebrate my 40th birthday offered me a blessed opportunity to spend time with G. He and I weren’t particularly close, and at that time he was no longer up to receiving many visitors, yet for reasons he couldn’t quite put a finger on, he didn’t hesitate to accept my offer to drop by.

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 INELDA End-of-Life Doula Training OMEGA - Summer 2024

UPCOMING EVENTS
Mapping Emotions Workshop - June 20 Mapping Emotions Workshop


June 20 | THU 12:30-3:30pm ET

This workshop, led by Wilka Roig, helps you explore your human responses to areas of importance, name the visceral emotions, and tease out their meaning. We will practice discerning, processing, and managing our emotions and feelings using an interactive guided imagery technique. | REGISTER

INELDA PRIDE Mentoring - Peer and Affinity Group - June 20 PRIDE Mentoring – Peer & Affinity Group


June 20 | THU 7pm-8:30pm ET

Come celebrate Pride this month with other INELDA doulas! This group offers participants a safe listening space to connect and to cultivate conversations that are specific to the needs of doulas within the LGBTQIA2S+ community. This is an open discussion about working with dying people and their loved ones. The PRIDE group is open and available at no additional cost to those who have completed INELDA’s training and are current Tier 2 or 3 members. Returning peer group members can access the zoom link through their INELDA account home page. If you are an INELDA-trained member, and are interested in joining the group REGISTER HERE

INELDA End-of-Life Doula Training - June 25 - July 30 End-of-Life Doula Training


June 25-July 30 | TUE 6:30-10:30pm & SAT 11:30am-1:30pm ET

This ONLINE doula training is for those who intend to serve the dying independently, as part of a hospice program, in a hospital or care facility, through a community program, or in a doula collective. Topics include models of care, deep active listening, ritual and ceremonies, vigil planning, and more. This class is open to all and will meet for six sessions. It also includes two optional Q&As, held on two Saturdays. Limited to 24 individuals. Click to see the full scheduleREGISTER

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MEDIA OF THE MONTH
Media of the Month - Death Interrupted
Death Interrupted: How Modern Medicine Is Complicating the Way We Die

by Blair Bigham, MD, reviewed by Lara Stewart-Panko

With his training and experience as a journalist, paramedic, scientist, and emergency room and intensive care unit physician, Blair Bigham has done an excellent job providing a thorough yet accessible examination of how contemporary medicine has made death more challenging for patients, families, and care providers alike.

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Cultivating Our Connections: INELDA’s Community Meet-ups
by Janine Cuthbertson

In January, INELDA introduced our Community Meetups, bringing members together for an hour to find belonging, inspiration, and connection. All INELDA members (Tiers 1-3) are invited and encouraged to drop in and connect.

Whether you are a new member, a longtime follower, or an INELDA-educated or INELDA-certified doula, we invite you to participate and become an engaged member of our global community. We welcome your individual gifts and experience, hope you feel fulfilled by the group, and find commonality among our members.

Cultivating our Connections: Community Meetups

The feedback to the meetups has been great, and I was excited to recently receive a note from Kamala Nanda in San Francisco: “The meetup far exceeded my expectations, and now I’m feeling connection to greater energy and support to do this work! Looking forward to next month’s Zoom!”

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INELDA UPDATE
VOLUNTEER OPPORTUNITIES

CLICK HERE for details about opportunities in these locations:

  • Sutter Care at Home in Roseville, California, is looking for any doulas who have an interest in getting field hours.

Roseville, California (Placer County and parts of Sacramento County)


  • HospiceCare in the Berkshires is looking for hospice volunteers to join our dedicated care team.

Berkshire County, Massachusetts

INELDA Update - Volunteer Opportunities

SUPPORT DUKE STUDY RESEARCH

Dr. Dan Ariely, founder of the Center of Advanced Hindsight, and undergraduate researcher Jenna Yeam are seeking to interview death doulas in the United States about “what is going wrong at the end of life.” READ MORE

CONGRATULATIONS!
We would like to congratulate Dr. Devin Guthrie on becoming an INELDA-certified end-of-life doula. Dr. Guthrie is based in Texas and offers life and death coaching.

 

If you are interested in finding out more about becoming an INELDA-certified doula, email us at [email protected]

INELDA UPDATE - Congratulations Dr. Devin Guthrie

STAFF UPDATES
  • Educator Omni Kitts Ferrara has moved into the role of curriculum advisor, and Katina Perkins has expanded into the role of the director of operations. 
  • We would like to welcome educator Jason Callahan, who joins INELDA from Richmond, Virginia. After a decade of being a professional chaplain specializing in end-of-life spiritual support within a medical system, he “decided the best way to support others is by sharing knowledge and experience with those that seek to be present with and hold the stories of others experiencing this sacred time in their lives.” 
  • Please also welcome Christian Andradelocated in Worcester, Massachusetts, and Alida Merrillbased in Rochester, New York, who will be supporting INELDA as educator assistants. They both bring deep knowledge and experience to our team.
  • We would like to welcome back educator Marady Duran, MSW, who will be teaching as well as staffing INELDA’s Emotional Support Center. 
  • Lastly, we would like to thank Kris Kington-Barker for her invaluable work and the energy she brought to INELDA. We wish her the best of luck

Learn more about our team


IN THE NEWS
The Daily Mail has published an article featuring executive director Douglas Simpson and educator Wilka Roigalong with INELDA-certifed doula Laura Lyster-Mensh, about the role of end-of-life doulas and the support we offer.
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INELDA’S june WEBINAR
Monthly Webinar
Faith and Health Caring with AC Care Alliance
June 26 | WED 7-8:30pm ET

We are excited to welcome the Rev. Cynthia Carter Perrilliat, the Alameda County Care Alliance’s executive director, for a conversation around the essential role of the organization in bridging the gap between health delivery systems, community organizations, faith-based communities, and communities of color in managing advanced illness.

With a network today of over 40 churches, more than 15,000 individuals have benefited from the work of the AC Care Alliance. The group addresses serious health concerns among their congregants and poor integration of spiritual concerns into health care for those living with serious illness.

Guest Speakers - Rev Cynthia Carter Perrilliat

INELDA educator, doula, and advance care planning expert Valoria Walker will moderate this informative discussion.

 Cost: Free with INELDA Tier 2 & 3 Membership | Tier 2 and non-members $15

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PRACTICE CORNER

TOOLBOX TIPS
Tool Box

I was gifted the Mourner’s Bill of Rights written by Dr. Alan D. Wolfelt through a child loss and bereavement support group I was a part of. (Thanks to George Mark Children’s House, which has helped me out greatly. It is the first freestanding pediatric palliative and hospice center in the United States.)


For myself, I have boiled down the 10 statements to two points or questions. If you have not willingly hurt yourself in expressing your grief—congratulations, your grief is valid! If you have not willingly hurt someone else in expressing your grief—congratulations, your grief is valid! Can grief be awkward for everyone involved when you are expressing it? Sure. Does it want to express itself at very odd times? Absolutely. But however or whenever you choose to express or not express that grief, it is up to you, and you have a right to grieve or not grieve as necessary.

Tylia Gardner

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SHARING SOURCES
CancerCare

CancerCare was founded in 1944 with the mission of helping cancer patients. Today it is a leading national nonprofit organization, helping people cope with and manage both the emotional and practical challenges of cancer. All of its services are provided by professional oncology social workers dedicated to supporting people affected by cancer.

Sharing Sources - CancerCare

CancerCare services include resource navigation, individual counseling, support groups, education, resource referrals, and financial and co-payment assistance.

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ASK INELDA

Ask INELDA Image - Eucalyptus Branch

How do I choose the best model for delivering advance care planning?—Training participant

Educator Valoria Walker: I don’t consider advance care planning (ACP) a “model” but a series of conversations to identify and honor medical choices one may face in an emergency. Advance directives are state-specific and can range from writing a note on paper to creating an online account. Most forms consist of naming the health care agent and identifying choices for life-sustaining treatments. The most essential tool for servicing clients is assessing their needs and wants. This assessment will provide the information needed to determine what documentation method will best serve the client. Helping the client and their families discuss who will communicate their choices if they cannot speak for themselves allows for one’s wishes to be documented before a medical emergency. ACP creates opportunities for shared decision-making conversations at any time, not just at the end of life. The best model is to become educated on the forms and methods used in the state where you will provide services. READ MORE
Please submit questions to [email protected]
Self-Care - Acceptance as a Practice

SELF-CARE

Acceptance as a Practice

Doulas have go-to tools that we may use on a daily basis to support our state of mind and enable us to enter our practice with grounded presence. One of those tools is acceptance. As a foundation for mindful awareness our mental health plays a significant role when it comes to having a tangible sense of grounded presence. There are a few go-to tools that we may use on a daily basis to support our state of mind, one of them being the practice of acceptance. As a foundation for mindful awareness, acceptance is a heavy lifter. Allowing thoughts, feelings, and experiences to flow is a key step for processing and holding our hearts with grace. And to do this without censoring or judging sets the stage for openness. Sounds great, right? Sometimes easier said than done. READ MORE

Kimberly Jordan Allen

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News Briefs
Alcohol Deaths Increasing, Especially in Native Populations
While no public health emergency exists regarding alcohol usage, over 54% of adults in the United States say that someone in the family has struggled with an alcohol use disorder, reports KFF. The Department of Health and Human Services has set a goal “of reducing emergency department visits for acute alcohol use, mental health conditions, suicide attempts, and drug overdoses by 10% by 2025.” READ MORE  News Brief - Alcohol Deaths Increasing, Especially in Native Populations
Doctors Should Review Goals of Care
Becker’s Hospital Review reported a collaborative study conducted by researchers at Yale Cancer Center in Connecticut and University of Texas MD Anderson Cancer Center. According to the article, “Researchers evaluated the health records of 78,446 adult cancer patients who were diagnosed with metastatic and advanced tumors of either breast, colorectal, non-small cell lung, pancreas, kidney, and urothelial cancers. READ MORE
News Brief 3-Growing Heat Levels Will Put Older Adults at Risk
Growing Heat Levels Will Put Older Adults at Risk
A study reported in Science News shows that nearly a quarter of the global population will face extreme heat by 2050. The study states that in addition to the millions affected today, 246 million adults age 69 and older could experience temperature extremes that exceed 37.5°C (95.5°F). This population is concentrated in Africa and Asia. READ MORE 

The Final Word
Something
by Jamie Valvis

The minute the doctor says colon cancer

you hardly hear anything else.

He says other things, something

about something. Tests need to be done,

but with the symptoms and family something,

excess weight, something about smoking,

all of that together means something something

something something, his voice a dumb hum

like the sound of surf you know must be pounding,

but the glass window that has dropped down

between you allows only a muffled hiss

like something something. He writes a prescription

for something, which might be needed, he admits.

He hands you something, says something, says goodbye,

and you say something. In the car your wife says

something something and something about dinner,

about needing to eat, and the doctor wanting tests

doesn’t mean anything, nothing, and something

something something about not borrowing trouble

or something. You pull into a restaurant

where you do not eat but sit watching her

eat something, two plates of something,

blurry in an afternoon sun thick as ketchup,

as you drink a glass of something-cola

and try to recall what the doctor said

about something he said was important,

a grave matter of something or something else.

 
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